HOPE FOR HUZAIFAH AS TARGET NEARS

Written by on September 17, 2019

The fundraising target for Huzaifah Zia’s life-saving treatment edges nearer as the community rallies together for the little boy.

The family have been set a target of £65,000 so he can have pioneering gene therapy treatment in Poland.

A fun day last Saturday at the St. Peter’s Centre saw local people come out in support of the five-year-old.

Dad Shohaib said: “Huzaifah was born with this condition but was diagnosed at the age of 6 months.

“He is one of six children in the United Kingdom with this condition. Due to it being so rare, his treatment is not available in this country.

“They have done this operation in Japan and the United States and we have seen the positive impact on the children. We have seen videos of these children walking and talking, which Huzaifah cannot do at the moment. We are hoping that with this operation, he can be a normal child.”

Huzaifah was diagnosed with a rare condition called AADC (Aromatic Amino Acid Decarboxylase Deficiency) shortly after birth.

To donate to the Justgiving page, please visit https://www.justgiving.com/fundraising/huzaifah-zia.

We would love to hear from you. If you have a community story that deserves to be heard, then drop us a line on news@inspirefm.org or call the newsdesk on 01582 48 18 10.


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